Cammy Can Reverse Rett
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God gives us only what we can handle. Apparently God thinks I’m a bad-ass.
Mother's Day 2013: A Letter to Myself Growing Up.
Letters to Cammy since before she was born and Present Day
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Tuesday, January 27, 2015
Thank you Hyatt Regency Cambridge
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This is a long overdue THANK YOU to the amazing Hyatt family. Our daughter has a rare neurological disorder called Rett syndrome. I...
Monday, January 12, 2015
Dec 23, 2014: Final blood draw and check up with Dr. K in 2014
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Cammy had to fast this morning. We had to get to the hospital by 8. We were waiting out front for the bus when Pat pulled the shuttle up t...
Dec 22, 2014: Final injection of 2014
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FINAL DAY OF SHOTS! After Al made Cammy another amazing pancake breakfast with a smoothie, we made sure we said goodbye to all our favorite...
Dec 20-21, 2014: Weekend in Boston
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At breakfast, Cammy ate her entire plate of pancakes with real whipped cream, syrup, 1/2 banana and a few strawberries. She's going to ...
Dec. 19, 2014: BU vs USA Junior World Hockey
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Cammy and I had a relaxing swim in the morning. We both actually took an hour long nap. We were both very excited to see Bi...
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