Saturday, August 9, 2014

August 2-3, 2014: Ryan's "Best Day Ever"

Saturday, August 2:
Cameron woke up at 1 am, then again at 4:30 and remained up for the morning. I think she was just excited to not have an appointment today. As soon as Ryan woke up, she asked it it was time for the beach. She acted like it was Christmas when Mrs. D'Amour pulled out the beach bag full of buckets and shovels.
Today was Ryan's big day. She's really been a trooper through all of this. She's been looking forward to going to the beach all trip. Today was her big beach day and we were not going to let a little rain stop us!
Coast Guard Beach had an awesome gigantic wheelchair with big wheels made for off roading. Cammy looked like a little peanut in it. We had her all bundled up with a golf umbrella keeping her dry. She napped the entire time we were at the beach. With the cooler weather, the sound of the rain, I thought it was prime napping conditions. 

Ryan kicked off her shoes and started digging with one of the shovels. She and Billy went to the water to dip their toes in and get water for their sand castles. She was in heaven.
We noticed dozens and dozens of seals clustered together on the sand. We walked closer to get a better look. Everyone there said they had never seen anything like that for as long as they'd been coming to the Cape. Ryan was more interesting in trying to skip stones in the water.
We left by noon, just in time as the rain really started pouring in. 

It was so nice to have a homemade lunch back in a house. Even though it rained all day, it was so nice to be stuck inside a big house rather than a hotel room. It was a perfect afternoon to rest and watch movies. No one complained about that plan.
The girls were excited about a home cooked dinner. Billy was thrilled to get into the kitchen and cook after a week hiatus. He made a delicious seafood risotto with shrimp, scallops and swordfish.
We have enjoyed every minute on Cape Cod. We understand why people have summer homes here!

Sunday, August 3:
Even though we've been in an incredible house with awesome beds to sleep in, Cameron has been awake from 1-4am again giggling and having her own party. "Angel parties" are common amongst girls with Rett. They just seem so be having a little party by themselves in their bed. Cammy does not have them often, I can only recall 3 in the past 3 years. Don't get me wrong, I'm glad she's giggling for hours in the middle of the night rather than screaming or crying, but it would be nice to get some sleep.  I have no idea how Ryan has slept right through it the past two nights sleeping right next to her. Billy and I unfortunately could not sleep through the giggles and chatting.
After a nice breakfast, we headed out to the MA Audobon. Again, Ryan was in heaven. Mrs. D said that she's never even taken her own children there; we were the first kids she's taken.
Ry loved the little turtles in the aquarium too.  There were beautiful trails. Ryan loved looking at all the different trees.   It was pretty easy to push the wheelchair through the trails too.
After lunch we said our goodbyes and headed back to Boston. We are going to miss Cape Cod. It was the perfect getaway in the midst of all of this. We already booked our stay next summer! 

When we checked in, we headed to the pool for a quick swim to loosen Cammy up. She hasn't had any therapies in 2 weeks, so we need to make sure she is well stretched.  Then, we walked around Brookline. It reminded us of Roscoe Village in Chicago.
Ryan and Cameron were excited to eat Mac n Cheese from Panera. They were even more excited to watch a movie before bed.
We are ready for our final 2 days in Boston. Tomorrow should be an easy day at the office. Tuesday will be a long one.

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